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A Jamey Update

Silly Jamey

It’s been a while since I did an update on my sweet silly Jamey, who is diagnosed as autistic, speech delayed and also just a wee bit spoiled.  We’ve been doing a dye free diet for a while now, and we also added in some high powered vitamins and fish oil.

Who is now 4!

Who is now counting to ten!

Who is now…talking?

What is this? What happened to the boy who had about 20 words when he was tested for PPCD?

Well, he found some new ones. About 140 more, to be exact.

Jamey now has a functional vocabulary of over 150 words. With new ones coming every day. He doesn’t rely on sign language any more. If he knows the word, he says it.

Not always so well, but he tries.

His teacher, Miss K, and her assistants have done such a good job with him this year. I mean, it is just remarkable what being in a class of other talkers has done for Jamey.

I spent some time in his classroom for their holiday party and I am just in awe of what the teachers and assistants are able to do with these kids.  Let me tell you, I’ll be sticking to coupon clipping because I couldn’t make it..

I can’t wait to see what’s next for my sweet boy. I do know we’re going to continue with his dye free, MSG free, preservative free diet. Not exactly a Feingold diet, but close enough.  I’m always happy to talk about what we’re doing with Jamey, so if you have any questions, let me know!

Kristin

About the Author: Kristin Holt Duncan is a Houston area extreme couponer. She enjoys saving money on the foods that her family actually likes so that she can spend more money on things like Nutella. And Danskos. And Coach purses. You can find her elsewhere on the web, below.

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This post may contain affiliate links. You can see my full disclosure policy here.

Control Issues… (Life with a Special Needs Kid)

It’s been a long while since I posted something that wasn’t coupon, deal, or grocery store related. It’s time for a post about control.

I like being in control.

No, really.

I know that will come as an enormous shock to some of you, but I really do prefer it. I like to be in control of my house, my finances, and most especially my kids.

Jamey Smile

When I went back to work outside of the house full time in June, I knew I would have to give up some control. Okay, a lot of control. Jamey and I had a routine before that point. And it’s taken some time for us to find a new routine.

One that works for everyone.

Now, Jamey gets picked up by the school bus at our house.  He goes to preschool during the morning.  His teacher, Miss K and her two aides are fantastic with him.  They have a routine, and it works. When the routine has to change, Jamey needs time to adjust.

Jamey might possibly have some control issues, too.  ;)

Then, Jamey rides the school bus to the daycare.  He eats lunch, has a nap, and then a snack.  If the weather’s nice, they play outside, too.  Either Mommy or Daddy comes to pick him up, and Jamey navigates from his car seat in the back.  He actually knows which way is home, so don’t try to trick him.  Really.

We’ve had some adjustment issues at the daycare.  Teacher changes, staff changes, and routine changes.  But they’re working on it.

I’ve done a lot of letting go.  I can’t control everything he puts into his mouth when he’s not with me.  I can’t afford to stay home with Jamey, not if we want to have extras.  At this point, all I can do is educate his teachers on why we do what we do and hope that they follow the guidelines.

This parenting gig is hard, y’all.

But so very worth it.  When Jamey first was tested to enter the school district, he had about 15-20 words.  Now?  We’re knocking at 100.  He’s a sociable, active, excitable little boy who plays appropriately with his peers (most of the time).  He’s working on using the potty all of the time.  I am so very proud of him.

We just keep moving forward.

Kristin

About the Author: Kristin Holt Duncan is a Houston area extreme couponer. She enjoys saving money on the foods that her family actually likes so that she can spend more money on things like Nutella. And Danskos. And Coach purses. You can find her elsewhere on the web, below.

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This post may contain affiliate links. You can see my full disclosure policy here.

Special Needs on a Budget: Watching a Movie – June

AMC offers a “Sensory Friendly Film” once a month in partnership with the Autism Society. Lights are left on, sound is turned down, and you can move around!

You can find more information on it here, including participating locations. The closest one to me is AMC 30 Gulfpointe.

Once a month, on the first Saturday, kids of all ages and abilities can enjoy a movie.

Upcoming Sensory Friendly Screenings

June 16 – Madagascar 3: Europe’s Most Wanted

June 30 – Brave

July 21 – Ice Age: Continental Drift

August 11 – Diary of a Wimpy Kid: Dog Days

All shows are at 10:00 am local time. Dates and films are subject to change.

!

 

Kristin

About the Author: Kristin Holt Duncan is a Houston area extreme couponer. She enjoys saving money on the foods that her family actually likes so that she can spend more money on things like Nutella. And Danskos. And Coach purses. You can find her elsewhere on the web, below.

Facebook Twitter Google+ 


This post may contain affiliate links. You can see my full disclosure policy here.

Special Needs on a Budget: Watching a Movie – June

AMC offers a “Sensory Friendly Film” once a month in partnership with the Autism Society. Lights are left on, sound is turned down, and you can move around!

You can find more information on it here, including participating locations. The closest one to me is AMC 30 Gulfpointe.

Once a month, on the first Saturday, kids of all ages and abilities can enjoy a movie.

Upcoming Sensory Friendly Screenings

June 16 – Madagascar 3: Europe’s Most Wanted

June 30 – Brave

July 21 – Ice Age: Continental Drift

August 11 – Diary of a Wimpy Kid: Dog Days

All shows are at 10:00 am local time. Dates and films are subject to change.

!

 

Kristin

About the Author: Kristin Holt Duncan is a Houston area extreme couponer. She enjoys saving money on the foods that her family actually likes so that she can spend more money on things like Nutella. And Danskos. And Coach purses. You can find her elsewhere on the web, below.

Facebook Twitter Google+ 


This post may contain affiliate links. You can see my full disclosure policy here.

School Troubles…

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So, I haven’t written about the school for a while.

Mostly because everything was going on track, or got fixed appropriately.

Until yesterday.

Jamey had been running an ultra low grade fever – about 99. One dose of ibuprofen or tylenol and he was back at it. No problem. Not sick enough to go to the doctor, and not sick enough to stay home.

Fine, fine.

I go out to the driveway to get Jamey from the bus. His afternoon bus driver is a sweet lady. She tells me that Jamey had a fever at school and he can’t come back for 24 hrs.

Huh?

Why is the bus driver giving me this information?  I checked his bag, and no note from the nurse.

Phone broke? Nope, getting calls.  I even had my neighbor call and check.

Did they call CJ and he was busy? Nope, husband didn’t get a call.

I shot a quick email to his teacher asking for clarification and expressing my confusion. You can see it here.

I get Jamey settled with his cup, a clean diaper and his favorite show (Little Einsteins this week) and the phone rings.

It’s the nurse. With attitude. Oh, goody.

She tried to call me. I didn’t answer.  She dialed the wrong number for my husband.  His number is something like 1334 and she dialed 1834 instead.  One digit off.  Could be my handwriting, could be her.  Not sure.  Apparently, it wasn’t enough of an emergency to pull his care card which has the numbers again, as well as an additional emergency contact.  Of course it wasn’t.  He only had a “fever” of 99.5.  Not exactly life threatening.

When I asked her why she didn’t send a note, she got even more hostile.  Telling the classroom aide to tell the bus driver was apparently good enough in her book.

Not in mine.  If she knew at 9 am that he was running a temp, she had over an hour to get a note written.  An hour and 45 minutes to be exact.

Finally, I’m done listening to her condescension and I hang up after a brief  “Okay, thanks, bye.”  Because if I hadn’t gotten off the phone, it wouldn’t have been pretty.  I’ve got an attitude, and I know it.  But what I don’t have?  Is the patience for an employee of the district where I pay school taxes to insult me and talk down to me.

I shot an email off to the principal, which you can see hereHere is her response, almost 24 hrs later.  I have removed all identifying information, except mine.  Cause I don’t care.  ;)   Y’all know where to find me.

I’m ticked.  HIPAA covers the school because they’re a Medicaid provider.  I’m not sure why it covers the bus driver, though.  She had no burning need to know (burning, fever, I’m so punny today).  A fever of 99.5 isn’t even a real fever.

I called the district today and spoke to the admin for one of the assistant superintendents.  I don’t even know right now.

I do know that I don’t want this “nurse” treating my nonverbal kid though.  If she’s got this much of a problem being professional, her treatment comes under suspicion.

I’ll keep you updated!

Kristin

About the Author: Kristin Holt Duncan is a Houston area extreme couponer. She enjoys saving money on the foods that her family actually likes so that she can spend more money on things like Nutella. And Danskos. And Coach purses. You can find her elsewhere on the web, below.

Facebook Twitter Google+ 


This post may contain affiliate links. You can see my full disclosure policy here.

Special Needs on a Budget: Watching a Movie – May

AMC offers a “Sensory Friendly Film” once a month in partnership with the Autism Society. Lights are left on, sound is turned down, and you can move around!

You can find more information on it here, including participating locations. The closest one to me is AMC 30 Gulfpointe.

Once a month, on the first Saturday, kids of all ages and abilities can enjoy a movie.

Upcoming Sensory Friendly Screenings

May 5 – Pirates! Band of Misfits

June 16 – Madagascar 3: Europe’s Most Wanted

June 30 – Brave

July 21 – Ice Age: Continental Drift

August 11 – Diary of a Wimpy Kid: Dog Days

All shows are at 10:00 am local time. Dates and films are subject to change.

!

 

Kristin

About the Author: Kristin Holt Duncan is a Houston area extreme couponer. She enjoys saving money on the foods that her family actually likes so that she can spend more money on things like Nutella. And Danskos. And Coach purses. You can find her elsewhere on the web, below.

Facebook Twitter Google+ 


This post may contain affiliate links. You can see my full disclosure policy here.

A Day in the Life of a Misunderstood Boy

A day in the life of my son…

6:20 – Mom wakes me up. I like school so I get up and let her help me get dressed. I could totally do it myself.
6:35 – Time to get on the bus. New bus driver again. I get to sit in my seat. It’s not like my car seat, not nearly soft enough.
7:25 – I’m at the school! YAY! I love school. My teacher signs with me.
8:00 – Breakfast time! The other kids are eating strange things. I’ll stick to my food. And my cup.
9:00 – The loud little girl is crying again. I told Mama that she cries.
10:45 – Time to go home.
11:45 – Off the bus! The bus driver lets me honk the horn. I like to make loud noises.
11:55 – Time for lunch! Mama makes me a sandwich, carrots and dip, and a banana. I like bananas.
12:15 – Yay, TV time! I get to watch Team Umizoomi, and pat pat (Little Einsteins).
1:30 – Uh oh. Mama says it’s almost nap time. I do not like nap time.
2:00 – Mama turned the TV off. I wonder if I can grab the remote without her seeing me?
2:05 – She’s serious. She didn’t even laugh when I quacked.
2:15 – Fine. My bed is comfy. But I don’t have to like it.
4:00 – Where’s the snacks? Mmm, goldfishies. I like food things that have signs. Makes it easier to tender my demands. Oh, and here’s the kids! Yay, my minions are home!
6:00 – My minions are not entertaining me. Guess it’s time for Option C. Pull Sister’s hair.
7:00 – Dinner! Chicken and broccoli. I like.
7:45 – Bath time! Otherwise known as splash ALLL the things. Take a candy and brush my teeth. They’re not fooling me. Mama always puts the good stuff up high.
8:00 – Mama reads me a book. Chris reads me a book. Jordan gets a hair pull.
8:30 – Mama wants me to go to bed. But I think I’ll kick the wall for a while.

Since Jamey really doesn’t talk a lot, it’s a lot of fun to put words in his mouth. He is so animated, it’s always fun watching him try to communicate.

Kristin

About the Author: Kristin Holt Duncan is a Houston area extreme couponer. She enjoys saving money on the foods that her family actually likes so that she can spend more money on things like Nutella. And Danskos. And Coach purses. You can find her elsewhere on the web, below.

Facebook Twitter Google+ 


This post may contain affiliate links. You can see my full disclosure policy here.

Sensory Friendly Day at Children’s Museum of Houston

The Children’s Museum of Houston is having their first ever Sensory Friendly Access day!


What: Sensory Friendly Day at the Children’s Museum of Houston.
When: Monday, April 9th from 10 AM – 6 PM
Where: 1500 Binz, Houston, TX 77004
How Much: $9 per person

I cannot express how much this pleases me. Taking an autistic kid somewhere like the Children’s Museum is hard. Seeing them accommodate kids like Jamey just tickles me pink.

Kristin

About the Author: Kristin Holt Duncan is a Houston area extreme couponer. She enjoys saving money on the foods that her family actually likes so that she can spend more money on things like Nutella. And Danskos. And Coach purses. You can find her elsewhere on the web, below.

Facebook Twitter Google+ 


This post may contain affiliate links. You can see my full disclosure policy here.

Autism Awareness Month

April is Autism Awareness Month.

Yup.

I’m aware of it.

Every day.  Autism affects our day, every day.  It influences me at the grocery store, at home, and at school.

I thought I had more to say, but it’s not working right now.  I’ll leave you with a cute pic of my little autistic superstar.

Kristin

About the Author: Kristin Holt Duncan is a Houston area extreme couponer. She enjoys saving money on the foods that her family actually likes so that she can spend more money on things like Nutella. And Danskos. And Coach purses. You can find her elsewhere on the web, below.

Facebook Twitter Google+ 


This post may contain affiliate links. You can see my full disclosure policy here.

Special Needs on a Budget: Watching a Movie

AMC offers a “Sensory Friendly Film” once a month in partnership with the Autism Society. Lights are left on, sound is turned down, and you can move around!

You can find more information on it here, including participating locations. The closest one to me is AMC 30 Gulfpointe.

Once a month, on the first Saturday, kids of all ages and abilities can enjoy a movie. Shows start at 10 am!

April 7 – Mirror Mirror

May 5 – Pirates! Band of Misfits

June 2 – Madagascar 3: Europe’s Most Wanted

Kristin

About the Author: Kristin Holt Duncan is a Houston area extreme couponer. She enjoys saving money on the foods that her family actually likes so that she can spend more money on things like Nutella. And Danskos. And Coach purses. You can find her elsewhere on the web, below.

Facebook Twitter Google+ 


This post may contain affiliate links. You can see my full disclosure policy here.